Autistic Daily

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At the end of the day (or month, rather), how much does a parent really spend on autism?

A recent report done by the Interactive Autism Network (IAN), a research project at the Kennedy Krieger Institute in Maryland found, not surprisingly, one of the biggest stresses for families affected by autism is the lack of money.

Maxing out credit cards, taking part time jobs and utilizing home equity lines of credit still cannot keep up with the rising costs of therapy, medicine, and treatment.

Graphs located on the report’s website breaks down the costs based on what type of autism the child is diagnosed with.

The report noted that parents of children with classic autism spend the most money, with an average of $6,100 per year while parents of higher functioning autistics and Asperger’s spend less than $4,000 per year.

While quantitative data is good to look at, it helps to hear firsthand just how taxing lack of funds can be on a family.

Some of the statements included in the IAN report:

“I have lost everything. My home, my 17-year career, my transportation, my health care…!”

“There has been over $250,000 in out-of-pocket costs. I had to sell stocks, raid inheritance, and this week, I am cashing in my thrift savings plan (retirement money) so we can continue to fund ABA.”

“There are so many little things that are out-of-pocket. We have never been this in debt before. It is very scary and I admit, depressing.”

Visit the IAN report to learn more about the findings.

via autism.about.com

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